Nursing Research

A Computer-Based Education Intervention to Enhance Surrogates’ Informed Consent for Genomics Research

Do you think that alternative forms of community consent should be actively pursued? Why or why not?

        Alternative forms of community consent should be actively pursued. They should be pursued because some research such as genomics research are complex and have inherent social, legal, and ethical implications. Hence, the alternative forms of community consent should be actively pursued so that to have informed consent.

How would you feel if your medical records were examined and included in research without your consent based on an illness in the past?

        If my past medical records were examined and included in research without my consent I would feel exposed, upset, and humiliated.  The act of releasing my medical history without consent to the public involves a breach to my privacy and it is illegal.  I would then seek legal avenues for relief, such as perhaps suing the facility who released my records for invasion of privacy or breach of doctor-patient confidentiality.