Week 8 Questions

Week 8 Questions

Chapter 23 Rural and Migrant Health Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of

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Elsevier Inc. Rural Populations    The largest rural population in history of United States is now. 75% of counties are classified as rural; they contain only 20% of the U.S. population Number/size of rural counties are highest … ➢ ➢ ➢  in the South (35%) in the Midwest and West (23%) in the Northeast (19%) Census data ➢ ➢ ➢ 20% of nation’s children under 18 15% of nation’s elderly More than 50% of nation’s poor Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 2 Rural Populations (Cont.)  Economic base is shifting ➢ ➢ ➢ Agriculture is the “food and fiber system” All aspects of agriculture (core materials to wholesale and retail and food service sectors) are included Poverty in rural areas greater than in urban areas Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 3 Rural Populations (Cont.)     Poverty continues to be greater in rural America than in urban areas. Aging-in-place, out-migration of young adults, and immigration of older persons from metro areas. Greater diversity among residents: a country of immigrants historically and today. Health disparities exist—rural population more likely to be older, less educated, live in poverty, lack health insurance, and experience a lack of available health care providers and access to health care Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 4 Health Disparities Among Rural Americans       Only 10% of U.S. physicians practice in rural areas Ratio of physicians in rural population is 36:100,000 (nearly double in urban settings) More often assess their health as fair or poor More disability days resulting from acute conditions More negative health behaviors (untreated mental illness, obesity, alcohol, tobacco, and drug use) that contribute to excess deaths and chronic disease and disability rates Higher number of unintentional injuries Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 5 Defining Rural Populations  Population size ➢  Rural = towns with population of less than 2500 or in open country [farm/nonfarm] Density ➢ ➢ Rural = fewer than 45 persons per square mile Frontier = less than 6 people per square mile Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 6 Defining Rural Populations (Cont.)  The Rural-Urban Continuum uses population and adjacency to metropolitan areas ➢ Core Based Statistical Areas (CBSAs) • Metropolitan areas = county with at least one urbanized area of 50,000 or more people • Micropolitan area = area contains a cluster of 10,000 to 50,000 persons • Outside CBSAs = noncare areas Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 7 Describing Rural Health and Populations   Differ in complex geographical, social, and economic areas Disparities include key indicators of health: ➢ Employment ➢ Income ➢ Education ➢ Health insurance ➢ Mortality ➢ Morbidity ➢ Access to care Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 8 Rural Health Disparities: Context and Composition  Context: characteristics of places of residence ➢  Geography, environment, political, social, and economic institutions Composition: collective health effects that result from a concentration of persons with certain characteristics ➢ Age, education, income, ethnicity, and health behaviors – Braveman (2010) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 9 Context: Health Disparities Related to Place  A downward spiral may exist: ➢ people leave → services are lost → tax base becomes insufficient → fewer services are provided → long distances to get health care → jobs become scarce and more people leave → the cycle continues Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 10 Context: Health Disparities Related to Place (Cont.)     Access to health care (#1 priority) Fewer primary care physicians General health services lacking Health insurance coverage … ➢ Varies according to race and ethnicity; age and residence (rural or urban) ➢ Influences health patterns ➢ May create financial barriers to health care Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 11 Composition: Health Disparities Related to Persons  Income and Poverty ➢ ➢ ➢ ➢ ➢ One of the most important indicators of the health and wellbeing of all Americans, regardless of where they live. Regional differences—highest in the South Racial and ethnic minorities—rates among rural racial minorities two to three times higher than for rural whites Family composition—female-headed families have highest rates Children—among the poorest citizens in rural America Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 12 Composition: Health Disparities Related to Persons (Cont.)  Health risk, injury, and death ➢  Risk factors ➢    Higher rates of obesity, smoking, sedentary lifestyles, alcohol use, firearms usage, suicide, vehicular accidents; lower rates of seat belt use Age, education, gender, race, ethnicity, language, and culture Education and employment Occupational health risks Perceptions of health (gender, race, ethnicity) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 13 Agricultural Workers  Accidents and injuries caused by: ➢ Environmental conditions ➢ Geographic isolation and working alone ➢ Use of agricultural machinery ➢ Delayed access to emergency or trauma care  Acute and chronic illnesses: ➢ Musculoskeletal discomfort, acute and chronic respiratory conditions, hearing loss, hypertension ➢ Chemical exposure (pesticides, herbicides, etc.) ➢ Secondary conditions related to demanding farm work Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 14 Migrant and Seasonal Farm Workers (MSFW)  Health Disparities ➢ ➢  Poorest health and the least access Low income and migratory status Cultural, linguistic, economic, and mobility barriers ➢ ➢ Minimal or no preventive care • Mobile clinic sites form a central link to health services Migrant Health Program (MHP) bases services on enumeration of MSFW • Migrant and Seasonal Farm Worker Enumeration Profile Study (MSFWEPS) (2000) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 15 “Thinking Upstream” Concepts applied to Rural Health    Attack community-based problems at their roots Emphasize the “doing” aspects of health Maximize the use of informal networks Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 16 Rural Health Care Delivery System  Health care provider shortages ➢ ➢ ➢ Rural shortages likely to become worse Need to “grow their own” Telemedicine • Cost-effective alternative to face-to-face care • Telehealth includes telephones, fax machines, email, and remote monitoring • Telemedicine permits two-way, real-time, interactive communication between patient and provider Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 17 Rural Health Care Delivery System (Cont.)  Managed care in the rural environment ➢ ➢ Possible benefits: • Potential to lower primary care costs • Improve the quality of care • Help stabilize the local rural health care system Risks • Probable high start-up and administrative costs • Volatile effect of large, urban-based, for-profit managed care companies Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 18 Community-Based Care  A myriad of services provided outside the walls of an institution ➢    Home health and hospice care, occupation health programs, community mental health programs, ambulatory care services, school health programs, faith-based care, elder services (adult day care) Community participation in decisions about health care services Focus on all three levels of prevention An understanding that the hospital is no longer the exclusive health care provider Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 19 Home Care and Hospice  Nurse case management and development of local resources ➢ ➢ ➢ ➢ Often hospital based in rural areas Use county extension services as a bridge for outreach services Improve home care for these patients and provide support for their families A partnership between the public health nurse and county extension service could provide support, as well as information groups and caregiving classes, for the important informal provider network. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 20 Faith Communities and Parish Nursing     A strong sense of community, family life, and religious faith Integrating nursing expertise and faith-based knowledge to provide holistic care to members of congregations Involved in case management and coordination of services Collaboration with other organizations to extend limited rural community health resources Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 21 Informal Care Systems     Evolve from self-reliance and self-help traits of rural residents Include people who have assumed the role of caregiver based on their individual qualities, life situations, or social roles Provide direct help, advice, or information Need to identify and combine informal services with formal systems Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 22 Rural Public Health Departments Public health nurses are often the core providers of public health services in rural areas. ➢ ➢ Collaboration of services is key—need to develop partnerships with other heath provider agencies. Environmental health, maternal and child health, and communicable disease control are the three highestpriority programs. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 23 Rural Mental Health Care    Lack of specialized mental health providers in rural areas. Most services provided by primary care providers without adequate preparation or support. Perceived stigma prevents individuals from seeking mental health services. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 24 Emergency Services Getting patients from the place of injury to the trauma center within the “golden hour” is frequently not possible because of distance, terrain, climatic conditions, and communication methods. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 25 Emergency Services (Cont.)  Challenges faced by rural EMS systems ➢ ➢ ➢ ➢ ➢ Shortage of volunteers and lower levels of training Training curricula that often do not reflect rural hazards (e.g., farm equipment trauma) Lack of guidance from physicians Lack of physician training and orientation to EMS Also contributing to difficult public access for emergency care: • Low population density • Large, isolated, or inaccessible areas • Sever weather • Poor roads • Lower density of telephone/communication methods Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 26 Emergency Preparedness in Rural Communities  Challenges in rural areas: ➢ ➢ ➢ ➢ Resource limitation • Human, financial, and social capital Separation and remoteness • Longer response times Low population density • Impacts funding Communication • Warning systems often absent or neglected in remote areas; burden on individuals Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 27 Legislation and Programs Affecting Rural Public Health  Programs that augment health care facilities and services ➢ ➢ ➢ ➢ Community Health Centers (CHC) program Migrant Health Clinic (MHC) program and the Migrant Health Program (MHP) Medicare’s Rural Hospital Flexibility (RHF) grant program Primary care cooperative agreements Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 28 Rural Community Health Nursing “CH nursing along the rural continuum” Nonmetropolitan Areas Metropolitan Areas Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 29 Rural Nursing … … is the practice of professional nursing within the physical and sociocultural context of sparsely populated communities. It involves the continual interaction of the rural environment, the nurse, and his or her practice. Rural nursing is the diagnosis and treatment of a diversified population of people of all ages and a variety of human responses to actual (or potential) occupational hazards or actual or potential health problems existent in maternity, pediatric, medical/surgical and emergency nursing in a given rural area. –– Bigbee (1993), Lee & Winters (2004), Rosentahl (2005), Williams et al. (2012) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 30 Characteristics of Rural Nursing Should rural nursing practice be designated as a specialty or subspecialty area because of factors such as isolation, scarce resources, and the need for a wide range of practice skills that must be adapted to social and economic structures? Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 31 Characteristics of Rural Nursing (Cont.)  Positive aspects ➢ ➢ ➢ ➢ ➢ ➢  Ability to provide holistic care Know everyone well Develop close relationships with the community and with coworkers Enjoy rural lifestyle Autonomy and professional status Being valued by the agency and community Negative aspects ➢ Professional isolation Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 32 The newcomer practices nursing in a rural setting, unlike the more experienced nurse, who practices rural nursing. Somewhere between these extremes lies the transitional period of events and conditions through which each nurse passes at her or his own pace. It is within this time zone that nurses experience rural reality and move toward becoming professionals who understand that having gone rural, they are not less than they were, but rather, they are more than they expected to be. Some may be conscious of the transition, and others may not, but in the end, a few will say, “I am a rural nurse.” – Scharff (1998, p. 38) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 33 Rural Health Research  Research agendas must address: ➢ The capacity of rural public health to manage improvements in health ➢ Information technology capacity in rural communities ➢ Developing and monitoring performance standards in rural public health ➢ Developing leadership and public health workforce capacity within rural public health ➢ Interaction and integration of community health systems, managed care, and public health in rural America – Berkowitz, Ivory, & Morris (2002) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 34 Capacity of Rural Public Health to Manage Improvements in Health   Healthy People 2020 objectives and intervention strategies Information Technology in Rural Communities ➢ ➢ ➢ ➢ EHR and reimbursement Preparedness strengthens infrastructure Continuing education and advanced education Telehealth impact on public health • Skills via distance learning? • Costs and infrastructure of IT? • Gaps in epidemiology and surveillance capacity? Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 35 Performance Standards in Rural Public Health   National Public Health Performance Standards Program (NPHPSP) describe an optimal level of performance by public health systems regardless of location. Used to improve collaborations among key public health partners, educate participants about public health, strengthen the network of public health partners, identify strengths and weaknesses, and provide benchmarks for public health practice improvements Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 36 Leadership and Workforce Capacity for Rural Public Health     IOM report (2003)—preparing public health workforce for 21st century CDC Public Health Improvement Initiative (2012)—accreditation support Medicaid impact on interaction and integration of community health systems, managed care, and public health New models of health care delivery for rural and frontier areas being tested Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 37 Chapter 21 Populations Affected by Disabilities Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. Most people whose lives do not end abruptly will experience disability. – Nies & McEwen (2015) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 2 Doing a Self-Assessment      What comes to mind when you think of someone with a disability? Picture yourself as a person with a disability. Imagine yourself as a nurse with a visible disability, or a client receiving care from a nurse with a disability. Think about living in a family affected by disability. What is the experience of living with disability within your community? Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 3 Definitions for Disability Disability is the interaction between individuals with a health condition and personal and environmental factors. – World Health Organization, 2012 Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 4 WHO International Classification of Functioning, Disability, and Health    Disability is an umbrella term covering impairments, activity limitations, and participation restrictions (individual level). An impairment is a problem in body function or structure—activity limitation or participation restriction (micro level). A handicap is a disadvantage resulting from an impairment or disability that prevents fulfillment of an expected role (macro level). Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 5 Table 21-1 Characteristic Definition Measurability Illustrations Level of analysis Impairment Disability Physical deviation from May be objective and measurable normal structure, function, physical organization, or development Objective and measurable May be objective and measurable Micro level (e.g., body organ) Individual level (e.g., person) Handicap Not objective or measurable; is an experience related to the responses of others Not objective or measurable; is an experience related to the responses of others Spina bifida, spinal Cannot walk Reflects physical and cord injury, amputation, unassisted; uses psychological and detached retina crutches and/or a characteristics of the manual or power person, culture, and wheelchair; blindness specific circumstances Macro level (e.g., societal) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 6 National Agenda for Prevention of Disabilities (NAPD) Model Figure 21-1 Reprinted with permission from Pope AM, Tarlov AR, editors: Disability in America: toward a national agenda for prevention, Washington, DC, 1991, Institute of Medicine, National Academy Press. Copyright © 1991 by the National Academy of Sciences. Courtesy National Academy Press, Washington, DC. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 7 Quality of Life Issues       Transportation to a needed service Cost of care Appointment challenges Language barriers Financial issues Migrant/noninsured issues Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 8 Models for Disability 1. Medical model—a defect in need of cure through medical intervention 2. Rehabilitation model—a defect to be treated by a rehabilitation professional 3. Moral model—connected with sin and shame 4. Disability model—socially constructed Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 9 Disability: A Socially Constructed Issue   Disability is a complex, multifaceted, culturally rich concept that cannot be readily defined, explained, or measured (Mont, 2007). Whether the inability to perform a certain function is seen as disabling depends on socio-environmental barriers (e.g., attitudinal, architectural, sensory, cognitive, and economic), inadequate support services, and other factors (Kaplan, 2009). Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 10 “Medicalization” Issues  Nurse needs to differentiate … ➢ A person who has an illness and becomes disabled secondary to the illness versus … ➢ A person who has a disability, but may not need treatment Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 11 “Medicalization” Issues (Cont.)  Nurse’s interaction with PWD and families ➢ Approach on an eye-to-eye level ➢ Listen to understand ➢ Collaborate with the person/family ➢ Make plans and goals that meet the other’s needs and draw on strengths and improve weaknesses ➢ Empower and affirm the worth and knowledge of the person/family with a disability ➢ Promote self-determination and allow choices Note: PWD = persons with disabilities Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 12 Historical Perspectives       Long history of institutionalization/segregation Often viewed as sick and helpless In the 20th century, special interest groups emerged to advocate for PWD (e.g., ARC) Tragedies include Hitler’s euthanasia program Deinstitutionalization began in 1960s-1970s Stereotypical images still common in literature and media; these images influence prevailing perceptions of disability Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 13 Historical Context for Disability  Early attitudes toward PWD ➢ Set apart from others ➢ Viewed as different or unusual ➢ Documented in carvings and writings ➢ Infanticide or left to die (not in Jewish culture) ➢ Viewed as unclean and/or sinful ➢ Served as entertainers, circus performers, and sideshow exhibitions Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 14 Historical Context  18th and 19th century attitudes ➢ No scientific model for understanding and treating ➢ Disability seen as an irreparable condition caused by supernatural agency ➢ Viewed as sick and helpless ➢ Expected to participate in whatever treatment was deemed necessary to cure or perform  Industrial Revolution stimulated a societal need for increased education ➢ ➢ If not third-grade level = feeble-minded Special schools established in early 1800s Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 15 Historical Context (Cont.)  20th century attitudes ➢ ➢ ➢ ➢ ➢ Special interest groups were formed First federal vocational rehabilitation legislation passed in early 1920s Involuntary sterilization of many with intellectual disabilities ARC (Association for Retarded Children) began to advocate for children with intellectual disabilities—today is Association for Retarded Citizens ARC is “world’s largest community-based organization of and for people with intellectual and developmental disabilities” (ARC, 2009) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 16 Historical Context (Cont.)  20th century attitudes ➢ One of the most horrendous tragedies under Hitler’s euthanasia or “good death” program • Killed at least 5000 mentally and physically disabled children by starvation or lethal overdoses • Killed 70,274 adults with disabilities by 1941 • Over 200,000 people exterminated because they were “unworthy of life” ➢ Deinstitutionalization movement in 1960s and 1970s • Community-based Independent Living Centers established Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 17 Historical Context (Cont.)  Contemporary conceptualization ➢ Stereotypical images remain common in literature and media • Population portrayed as a burden to society or from pity/pathos or heroic “supercrip” perspectives • “just as the paralytic cannot clear his mind of his impairment, society will not let him forget it.” (Murphy, 1990, p. 106) ➢ Societal stigma still exists • Teasing or bullying often occurs in schools • Rehabilitation Act of 1973 and American with Disabilities Act of 1990 prohibit “disability harassment” Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 18 Characteristics of Disability  Americans with Disabilities Act (ADA) of 1990 and Rehabilitation Act of 1973 defined disability according to limitations in a person’s ability to carry out a major life activity. ➢  Major life activities: ability to breathe, walk, see, hear, speak, work, care for oneself, perform manual tasks, and learn U.S. Census Bureau (2006) defines disability as long-lasting physical, mental, or emotional condition that creates a limitation or inability to function according to certain criteria. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 19 Examples of Disabilities        Physical disabilities Sensory disabilities Intellectual disabilities Serious emotional disturbances Learning disabilities Significant chemical and environmental sensitivities Health problems Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 20 Measurement of Disability  Survey of Income and Program Participation (SIPP) ➢ Functional activities ➢ Activities of daily living (ADLs) ➢ Instrumental activities of daily living (IADLs)  American Community Survey (ACS) ➢  Surveys for disability limitation in six areas that affect function or activity (sensory, physical, mental/emotional, self-care, ability to go outside the home, employment) Other organizations also collect disability data Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 21 Prevalence of Disability     In 2010, approximately 18.7% of civilian noninstitutional population aged 5 years and older had a long-lasting condition or disability. Of those with a disability, 12.6% had a “severe” disability. Prevalence varies by race, age, and gender. It is important for health care policymakers and health care providers to recognize that the prevalence of disability is increasing. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 22 Prevalence of Disability in Children  Approximately 15.2% of households with children have at least one child with a special health care need (disabling condition). – National Survey of Children with Special Health Care Needs (2009/2010)  A disability is defined by a communication-related difficulty, mental or emotional condition, difficulty with regular schoolwork, difficulty getting along with other children, difficulty walking or running, use of some assistive device, and/or difficulty with ADLs Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 23 Recommendation for the Nurse  Listen to parental concerns ➢ ➢ ➢  “Something is not right” Establishes an important bond with parents Nurse can serve as an intermediary Regularly assess for key developmental milestones ➢ Compare with predicted values ➢ Work with team of resource providers on IEP  Be cognizant of disability within the context of culture and aging Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 24 Legislation Affecting People with Disabilities  Individuals with Disabilities Education Act (IDEA) (1975); reauthorized in 1997, 2004 ➢ ➢ Ensured a free appropriate public education (FAPE) in the least-restrictive setting to children with disabilities based on their needs Parents, students, and professionals join together to develop an Individualized Education Program (IEP), including measurable special educational goals and related services for the child. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 25 Americans with Disabilities Act of 1990 and ADA Amendments Act of 2008  ADA: Landmark civil rights legislation that prohibits discrimination toward people with disabilities in everyday activities ➢ ➢ Guarantees equal opportunities for people with disabilities related to employment, transportation, public accommodations, public services, and telecommunications Provides protections to people with disabilities similar to those provided to any person on basis of race, color, sex, national origin, age, and religion Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 26 Americans with Disabilities Act of 1990 and ADA Amendments Act of 2008 (Cont.)  ADA (Cont.) ➢ ➢ Refers to a “qualified individual” with a disability as a person with a physical or mental impairment that substantially limits one or more major life activities or bodily functions, a person with a record of such an impairment, or a person who is regarded as having such an impairment. Qualifying organizations must provide reasonable accommodations unless they can demonstrate that the accommodation will cause significant difficulty or expense, producing an undue hardship. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 27 Ticket to Work and Work Incentives Improvement Act (TWWIIA)    Increases access to vocational services; provides new methods for retaining health insurance after returning to work Increases available choices when obtaining employment services, vocational rehabilitation services, and other support services needed to get or keep a job Became law in 1999, amended in 2008 Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 28 Public Assistance Programs  Cash assistance ➢ ➢    Supplemental Security Income—SSI Social Security Disability Insurance—SSDI Food stamps Public/subsidized housing Costs associated with disability ➢ Gaps in employment, income, education, access to transportation, attendance at religious services Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 29 Health Disparities in Quality and Access  Disparities are caused by … ➢ Differences in access to care ➢ Provider biases ➢ Poor provider-patient communication ➢ Poor health literacy  Persons with disabilities experience … ➢ ➢  Higher rates of chronic illness Increased risks for medical, physical, social, emotional, and/or spiritual secondary issues People with intellectual disabilities are ➢ Undervalued and disadvantaged Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 30 Systems of Support for People With Disabilities Figure 21-2 Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 31 The Experience of Disability   PWD may be largest minority group in the United States Different experiences, depending on … ➢ ➢ ➢  Temporary disability Permanent disability from accident or disease Disability from progressive decline of a chronic illness Benchmark event is acceptance of the label of “disabled” Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 32 Children With Disabilities (CWD)  Family and caregiver responses ➢ ➢  Redefine image and expectations for child and self Sibling response influenced by age, coping, peer relationships, parents, impact on family Levels of parental adjustment ➢ ➢ ➢ ➢ The ostrich phase Special designation Normalization Self-actualization Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 33 Family Research Outcomes      Established various benefits, amid challenges Families with satisfying emotional support experience fewer potentially negative effects of unplanned or distressing events. Parents may grieve the loss of idealized or expected child over time. Supportive relationship is needed. Empowerment and enabling decision making on behalf of CWD is important. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 34 Knowledgeable Client  A person who lives with a disability commonly becomes an expert at knowing what works best for his or her body. Knowledgeable Nurse  The nurse who has information about the disability and the available community and governmental resources. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 35 Strategies for the CH Nurse       Do not assume anything. Adopt the client’s perspective. Listen to and learn from client. Gather data from the perspective of the client and family. Care for the client and family, not for the disability. Be well informed about community resources. Become a powerful advocate. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 36 Dealing With Ethical Issues     Spiritual perspectives Quality of life (QOL) and justice perspectives Proper use of scientific advances Self-determination, deinstitutionalization, and disability rights Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 37 When the Nurse Has a Disability    Education programs and employers must provide reasonable accommodations for qualified students and nurses. Technical aspects of nursing tend to discriminate; nursing should emphasize “humanistic” capacities. Type of setting influences functionability. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 38 Nurses Can … … become familiar with a variety of ethical frameworks for decision making. … help the patient and family access needed information to make informed decisions. … help educate the public on health care issues. … participate in the development of institutional policies and procedures related to disability. … take a position on an ethical issue. … work to influence government policies and laws. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 39
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Community health nursing practice discussion

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Chapter 20 Family Health Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc.

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Working with Families    Working with families has never been more complex or rewarding than now. Nurses understand the actual and potential impact that families have in changing the health status of individual family members, communities, and society as a whole. Families have challenging health care needs that are not usually addressed by the health care system. . Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 2 How Do You Define a Family? Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 3 Definitions of a Family Historical definitions:  The environment affecting individual clients  Small to large groups of interacting people  A single unit of care with definable boundaries  A unit of care within a specific environment of a community or society Current theorists:  Two or more individuals who depend on one another for emotional, physical, and economic support. Members of family are self-defined. – Hanson & Kaakimen (2005)  The family is who they say they are. – Wright & Leahey (2000) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 4 Inclusive Definitions of Family “Family” means any person(s) playing a significant role in an individual’s life. This may include person(s) not legally related to the individual. Members of “family” include spouses, domestic partners, and both differentsex and same-sex significant others. “Family” includes a minor patient’s parents, regardless of gender of either parent … without limitation as encompassing legal parents, foster parents, same-sex parent, step-parents, those serving in loco parentis, and others operating in caretaker roles. – Human Rights Campaign ( 2009) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 5 The Changing Family  Purposes of the family ➢ ➢  To meet the needs of society To meet the needs of individual family members Examples of different family types ➢ Traditional, nuclear family ➢ Multigenerational family household ➢ Cohabitating families ➢ Single-parent families ➢ Grandparent-headed families ➢ Gay or lesbian families ➢ Unmarried teen mothers Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 6 The “Sandwich” Generation Figure 20-1 From Pew Research Center: Social and Demographic Trends: The Sandwich Generation. http://www.pewsocialtrends.org/2013/01/30/the-sandwich-generation/. Accessed March 15, 2013. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 7 Why Is It Important for the CHN to Work with Families?     The family is a critical resource. Any dysfunction in a family unit will affect the members and the unit as a whole. Case finding can identify a health problem that leads to risks for the entire family. Nursing care can be improved by providing holistic care to the family and its members. – Friedman, Bowden, & Jones (2003) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 8 Approaches to Meeting the Health Needs of Families Moving from the Individual to the Family Moving from the Family to the Community Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 9 Moving from the Individual to the Family  Family interviewing ➢ Manners ➢ Therapeutic conversations ➢ Genogram and Ecomap ➢ Therapeutic questions ➢ Commending family or individual strengths ➢ Issues in family interviewing • Many locations, family informant, family health portrait, involvement of children  Intervention in cases of chronic illness Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 10 Moving from the Family to the Community       The health of communities is measured by the well-being of its people and families. Families are components of communities. Cross-comparison of communities must include health needs as well as resources. Cross-compare the needs of the families within the community and set priorities. Delegation of scarce resources is essential. A double standard in public health is tolerated. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 11 Family Theory Approach 1. Any “dysfunction” that affects one member will probably affect others and the family as a whole. 2. The family’s wellness is highly dependent on the role of the family in every aspect of health care. 3. The level of wellness of the whole family can be raised by reducing lifestyle and environmental risks by emphasizing health promotion, self-care, health education, and family counseling. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 12 Family Theory Approach (Cont.) 4. Commonalities in risk factors and diseases shared by family members can lead to case finding within family. 5. Individual is assessed within larger context of family. 6. Family is vital support system to individual member. – Friedman (1994) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 13 Systems Theory Approach The family as a unit interacts with larger units outside the family (suprasystem) and with smaller units inside the family (subsystem). – Friedman (1998) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 14 Healthy Families     Members interact with each other; listen and communicate repeatedly in many contexts. Healthy families establish priorities. Members understand that family needs are the priority. Healthy families affirm, support, and respect each other. Members engage in flexible role relationships, share power, respond to change, support the growth/autonomy of others, and engage in decision making that affects them. – DeFrain (1999) and Montalvo (2004) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 15 Healthy Families (Cont.)     The family teaches family and societal values and beliefs and shares a religious core. Healthy families foster responsibility and value service to others. Healthy families have a sense of play and humor and share leisure time. Healthy families have the ability to cope with stress and crisis and grow from problems. They know when to seek help from professionals. – DeFrain (1999) and Montalvo (2004) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 16 Structural-Functional Conceptual Framework  Internal structure ➢  External structure ➢ ➢   Family composition, gender, rank order, functional subsystem, and boundaries Extended family and larger systems (work, health, welfare) Context: ethnicity, race, social class, religion, environment Instrumental functioning (routine ADLs) Expressive functioning ➢ Emotional, verbal, nonverbal, circular communication; problem solving; roles; influence; beliefs; alliances and coalitions Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 17 Developmental Theory  Family life cycle (Duvall & Miller, 1985) ➢ ➢ ➢ ➢ ➢ ➢ ➢ Leaving home Beginning family through marriage or commitment as a couple relationship Parenting the first child Living with adolescent Launching family (youngest child leaves home) Middle-age family (remaining marital dyad to retirement) Aging family (from retirement to death of both spouses) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 18 Family Health Assessment Tools  Genogram ➢  Family health tree ➢  A tool that helps the nurse outline the family’s structure Family’s medical and health histories Ecomap ➢ Depicts a family’s linkages to their suprasystems Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 19 Family Health Assessment Tools  Family Health Assessment ➢ Addresses family characteristics, including structure and process and family environment ➢ Information obtained through interviews with one or more family members, subsystems within the family, or group interviews of more than two members of the family ➢ Additional information obtained through observation of family and their environment Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 20 Genogram Figure 20-2 Redrawn from Genopro Software: Symbols used in genograms, 2009: www.genopro.com. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 21 Ecomap Figure 20-4 Redrawn from Hartman A: Diagrammatic assessment of family relationships, Soc Casework 59:496, 1978. Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 22 Social and Structural Constraints   Identify what prevents families from receiving needed health care or achieving a state of health Usually based on social and economic causes ➢ ➢ ➢ Literacy, education, employment If disadvantaged, often unable to buy health care from private sector Hours of service, distance and transportation, availability of interpreters, and criteria for receiving services (age, sex, income barriers) Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 23 Family Health Interventions  Institutional context of family therapists ➢ ➢ ➢ Ecological framework: A blend of systems and developmental theory that focus on the interaction and interdependence of families within the context of their environment Social Network Framework: Involves all connections and ties within a group; social support Transactional model: A system that focuses on process as opposed to a linear approach Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 24 Applying the Nursing Process    Knowledge of self, previous life experiences, and values is crucial in planning home visits Gather referral information, review assessment forms, and gather intervention tools (e.g., screening materials, supplies) before going to the home Flexibility is important in working with families Copyright © 2015, 2011, 2007, 2001, 1997, 1993 by Saunders, an imprint of Elsevier Inc. 25
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Paragraph 6

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Please write a paragraph responding to the discussion bellow. Add citations and references in alphabetical order.

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Accountable Care Organization” (ACO) which is highlighted as one of the provisions by the Patient Protection and Affordable Care Act (PPACA), is one of the innovative health care delivery model that incorporates an interdisciplinary care delivery team is the anticipating the interdisciplinary team collaboration of various healthcare discipline coming together under one umbrella of holistic care which embodies or include nurses, nurse practitioners, primary care physicians, medical specialists, psychologist, pharmacists, nutritionists, dietitians, social workers, and providers of alternative medicine within organized structures such as hospitals (Haas, 2011).

The objective or goal is to provide the maximum cost-effective care possible that internalize patient as part of the plan of care. This delivery care system however, is advantageous and valuable to patient outcomes because it uses evidence-based etiquettes or protocols and research, whereby patients can be cared for in different settings and home and it uses budgets and resources for least expense possible. This benefit will enhance helps with patient outcomes because its goal is to reduce admissions to the hospital and promote preventive and primary care. Therefore, this will result in high quality and affordable cost for the patient and the facility, also embark on integrating value assurance and systematic health care delivery with easy access to health care to enhance a new focus on prevention and wellness, offering opportunities to strengthen early intervention.

References

American Nurses Association, (2010). ANA’s health reform website retrieved from: http://www.rnaction.org/site/PageServer?pagename=n…

Applying an Ethical Decision-Making Model Assignment

Applying an Ethical Decision-Making Model Assignment

Article An integrated ethical decision-making model for nurses Nursing Ethics 19(1) 139–159 ª The Author(s) 2012

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Reprints and permission: sagepub.co.uk/journalsPermissions.nav 10.1177/0969733011413491 nej.sagepub.com Eun-Jun Park Kyungwon University, Korea Abstract The study reviewed 20 currently-available structured ethical decision-making models and developed an integrated model consisting of six steps with useful questions and tools that help better performance each step: (1) the identification of an ethical problem; (2) the collection of additional information to identify the problem and develop solutions; (3) the development of alternatives for analysis and comparison; (4) the selection of the best alternatives and justification; (5) the development of diverse, practical ways to implement ethical decisions and actions; and (6) the evaluation of effects and development of strategies to prevent a similar occurrence. From a pilot-test of the model, nursing students reported positive experiences, including being satisfied with having access to a comprehensive review process of the ethical aspects of decision making and becoming more confident in their decisions. There is a need for the model to be further tested and refined in both the educational and practical environments. Keywords decision making, ethics, ethical issues, nursing ethics, problem solving Introduction Patients’ safety and well-being are dependent, to a large extent, on professionals’ ethical decisions.1 Regardless of his or her excellence in clinical knowledge and skills, a healthcare professional who has low or non-existent ethical standards should be considered unfit to practice. For responsible healthcare, professionals have to be competent in ethical decision making.2 An ethical problem is ‘as [an ethical] matter or issue that is difficult to deal with, solve, or overcome and which stands in need of a solution’ (p.94).3 Ethical problems in a clinical setting are those we rarely confront in our daily lives, and ethical norms learned from our parents or schools are not sufficient to resolve clinical ethical issues. There are concerns about professionals’ ethical competency. Health professionals often adopt an inconsistent decision-making process or reach inconsistent ethical conclusions in attempts to resolve identical ethical problems.1,4,5 Moreover, they tend to come to decisions of an ethical nature before reviewing all possible alternatives or going through a systematic and comprehensive decision process.2 It is challenging for clinicians to make ethical decisions. Health professionals attempt to achieve the best possible and morally-justifiable resolution while prioritizing a patient’s interest.6 Accordingly, the quality of ethical decision making should be evaluated in terms not only of its conclusion but also the process of decision making. For example, whether all individuals Corresponding author: Eun-Jun Park, Department of Nursing, Kyungwon University, San65, Bokjeong-Dong, Sujeong-Gu, Seongnam-Si, Gyeonggi-Do, 461-701, Korea Email: eunjunp@gmail.com 139 140 Nursing Ethics 19(1) affected by the decision have an opportunity to share their informed decisions or preferences.7 An explicit and systematic method for ethical decision making is highly likely to improve the quality of such decisions for several reasons.2,8-11 First, ‘a model functions as an intellectual device that simplifies and clarifies the sources of moral perplexity and enables one to arrive at a self-directed choice’ (p.1701).2 Second, it eliminates a possibility of deviated assessment of an ethical problem, for example, not considering all relevant parties and their diverse preferences,12 or reaching conclusions based on his/her intuition rather than on intellectual rigor.13,14 Third, ‘communication and documentation of an explanation for a course of action’8 and collaboration among stakeholders become easier throughout an ethical decision-making process when a systematic decision-making model is shared.7 A systematic decisionmaking model helps identify where a gap in understanding an issue or a difference in value systems (disagreements) exist among stakeholders (interdisciplinary team) through transparent communication.1,15,16 Finally, the use of a systematic model of ethical decision making will allow for the accumulation of information concerning ethical decisions, thus revealing norms.7 Although nurses make ethical decisions every day, we know little about how similar are our ethical decisions to those of other nurses. If we collect information on our ethical decisions, codes of ethics can be developed being based on our normative ethics,7 which can be more acceptable and evidence based. Structured models for ethical decision making have been introduced by different authors. To name a few, Johnstone’s moral decision-making model3 includes stages to assess the situation, to identify moral problem(s), to set moral goals and plan moral action, to implement moral plans of action, and to evaluate moral outcomes. According to Davis, Fowler, and Aroskar,17 if a conflict of moral duties or values exists, we need to go through the following stages: 1) review of the overall situation to identify what is going on; 2) identification of the significant facts about the patient; 3) identification of the parties or stakeholders involved in the situation or affected by the decision(s) that is made; 4) identification of morally relevant legal data; 5) identification of specific conflicts of ethical principles or values; 6) identification of possible choices, their intent, and probable consequences for the welfare of the patient(s) as the primary concern; 7) identification of practical constraints and facilitators; 8) make recommendations for action; 9) take action if you are the decision maker and implementor of the decision(s) made; and 10) review and evaluate the situation after action is taken. In addition, Thompson et al.’s11 DECIDE model suggests to: 1) Define problems – what is an ethical issue?; 2) Ethical review – what principles are relevant to case?; 3) Consider options; 4) Investigate – ethical outcomes, costs and benefits; 5) Decide on action; and 6) Evaluate results. However, it is hard to say what are their strengths or weaknesses and which one is more greatly-accepted by clinicians. Therefore, the current study critically reviewed structured ethical decision-making models found via a systematic search of literature and suggested an integrated and comprehensive ethical decision-making model by synthesizing strengths of the different ethical decision-making models and by pilot-testing it. The suggested ethical decision-making model is meant to be prescriptive so that nurses may directly apply it in practice. Methods Peer-reviewed journal articles were searched using Medline and CINAHL databases. The following keywords and the subject headings were entered into the PubMed and CINHAL interface on 30 June 2010: (ethical OR moral) AND ((decision AND making) OR (decision AND model)). Four hundred and twenty-six articles from Medline and 202 additional articles from CINAHL were retrieved. Their titles and abstracts were reviewed for potential relevance, and then the selected 78 articles were reviewed for their full-text. Studies were selected if (1) their authors originally developed an original ethical decision-making process or model, (2) the ethical decision-making process or model clearly presented steps for decision, and (3) they were written in English. Studies were excluded mostly 140 Park 141 because (1) the authors introduced or applied an ethical decision-making process or model developed by other people, (2) they described only a theoretical background of ethical decision making without a decision-making process, or (3) their ethical decision-making process or model were developed for non-healthcare practitioners or for non-clinical settings, such as business, information technology, education, or research. A report of an ethical decision-making process for family physicians of Canada18 was included after reviewing references of the selected articles. Twenty structured ethical decision-making processes were reviewed systematically. An integrated ethical decision-making model was developed and modified through a pilot test of its usability. In two nursing ethics courses, 67 second-year baccalaureate nursing students were asked to solve four cases of clinical ethical problems through a group discussion involving three or four people and to submit a report of their decisions. This was a regular classroom activity of a nursing ethics course taught by the author. To test the developed model, 22 student groups discussed an initial two cases before learning the model, and, after a brief orientation, a further two cases applying the model. After the discussion class, the students were invited to participate in this study as a group by submitting their reflective essay of how the use of the structured model influenced their decision-making process or outcomes. Twenty student groups voluntarily participated without revealing their names, and thus individual participants were not identifiable so as to protect the students. Accordingly, whether or not they participated in this study, their grades or student-teacher relationships were unaffected. Findings Reviews of ethical decision-making or problem-solving models Twenty different ethical decision-making models were classified into two groups and ordered by their publication year: ‘Nine ethical decision-making processes’ (Table 1) and ‘Eleven ethical problemsolving processes’ (Table 2). An ethical problem-solving process includes an ethical decisionmaking process, which refers mainly to a cognitive process, but goes further by adding implementing the decision and evaluating its results. However, the authors of the reviewed articles did not clearly distinguish this difference, and interchangeably used the two terms: ‘ethical problem solving’ and ‘ethical decision making’. Only two studies1,18 out of the 11 (Table 2) explicitly acknowledged the difference by mentioning it in their article titles. These two terms were differentiated in this study, as necessary; otherwise the term ‘ethical decision making’ is used to refer to both, and they are analyzed and discussed together. The reviewed 20 studies were published from 1976 to 2010: one in the 1970s, seven in the 1980s, four in the 1990s, and eight in the 2000s. They show that interest in ethical decision-making process has been ongoing and that new models are being constantly developed even today. A chronological pattern of change was not found in ethical decision-making or problemsolving models. Among the reviewed 20 models, seven were developed for RNs or nurse practitioners, five for health professionals in general, four for physicians, two for psychologists, one for social workers, and one for a neonatal intensive care unit. Theoretical backgrounds and contextual factors. Most authors suggested ethical pluralism applying diverse ethical theories and perspectives in decision making as one ethical theory or perspective was unlikely to be a panacea for every ethical problem. Ethical pluralism seems to be natural in modern societies that are experiencing an increasing diversity of values.3 By adopting various theoretical alternatives, nurses are more likely to have a comprehensive moral vision.16 Deontology (principle-based approach) and consequentialist theory (teleology, ends-based approach) were predominantly adopted by the authors of the models, whereas some models were based on a single ethical theory: consequentialism.7,15,19 141 142 Bunting and Webb (1988)23 Haddad (1992)24 8 stages of decision theory component (continued) 2. Gather information 1. Respond to the sense or feeling that something is wrong 5 stages Health professionals, long-term care givers Utilitarianism & deontology Ethical reasoning structure of a professional (individual value), Psychological factors influencing decision: bounded rationality, contextual component (the projection, mixed motives or decision maker’s relationship competing demands with the client, the health care system) Health professionals Grundstein-Amado (1991)21 1. Problem perception Identification of the ethical problem Identification of the medical problem 3. What further information do 2. Information processing you require about either of the Gathering medical-technical information above in order to make a Seeking other sources of judgment? information 4. Who are the persons who will 3. Identification of the patient be affected by the decision? preferences 5. What are the values of the involved parties? 1. What are the health issues? 2. What are the ethical issues? Physicians (Perinatologists & Nurse practitioners neonatologists) Consequentialism & deontology Consequentialism & nonconsequential ethical theory Substantive structure: 1) philoso(deontology, codes of ethics, phy of the physician-patient the patient’s bill of rights) relationship, 2) interpretation of ethical principles, 3) ethical theories, 4) ultimate sources of our morality 5 stages of procedural structure 10 stages Pellegrino (1987)6 1. Establish a data base 1. Establish the Facts 2. Determine what is in the patient’s best interests 6 stages Teleology & deontology (rights and duties of involved persons) RNs Curtin and Flaherty (1982)29 Table 1. Nine studies of ethical decision-making processes 143 Pellegrino (1987)6 7 stages RNs Consequentialism Decision analysis model DeWolf Bosek (1995)15 6. Reach resolution Grundstein-Amado (1991)21 Kaldjian et al. (2005)9 8. What are the alternatives available? 9. What are the ethical justifications for each alternative? 10. What are the probable outcomes of each alternative? 7 stages Neonatal intensive care unit Collaborative decision (Consequentialism approach) Individual value system & the core values of the unit (continued) 5. Work with others to determine a course of action 7. The choice 8. Justification Baumann-Holzle et al. (2005)14 4. Seek a resolution/ determine option 3. Identify the ethical problem Haddad (1992)24 5. Listing the alternatives 6. Listing the consequences 6. What are the conflicts between 4. Identification of the ethical issues values or ethical principles? 7. Must a decision be made and, if so, whose decision is it? Bunting and Webb (1988)23 Physicians Social workers Ethical pluralism including conseTeleology & deontology quentialism & deontology Value system or preference of the decision maker, context of the environment, individual decision making styles 7 stages 6 stages 1. State the problem plainly Mattison (2000)13 4. State your decision in concrete terms 5. Justify the decision 3. Define the ethical issues and 2. Identify and clarify principles the ethical components 3. Determine the rights, duties, authority and capabilities of the decision makers 4. Determine possible causes of action 5. Reconcile facts and values; hold multiple values in tension Curtin and Flaherty (1982)29 Table 1 (continued) 144 Kaldjian et al. (2005)9 Baumann-Holzle et al. (2005)14 1. Background information /case details 2. Separating practice considerations and ethical compounds 4. Decision (consensus) 5. Planning the discussion with the parents 6. Discussion with the parents 1. Description of the child’s 2. Gather and organize data: medical information, care and medical facts, medical goals, social situation patient’s goals and preferences, 2. Different aspects of evaluation context the infant’s chances of survival the infant’s chances of dying if mechanical ventilation and other critical assistance are continued/withdrawn the infant’s actual suffering the infant’s possibility to live independently in the future without developing severe handicaps 3. Ask: Is the problem ethical? 3. Identifying value tensions 4. Identifying principles in the code 4. Ask: Is more information or dialogue needed? of ethics which bear on the case 3. Developing at least three 5. Identify possible courses of different scenarios action (benefit/cost, projected outcomes) Mattison (2000)13 6. Identify the best action 6. Assessing which priority/obliga- 5. Determine the best course of action and support it with tion to meet foremost and jusreference to one for more tifying the choice of action sources of ethical value: ethical 7. Resolution principles, rights, consequences, comparable cases, professional guidelines, conscientious practice 7. Evaluate the action 6. Confirm the adequacy of the 7. Evaluation of the decision choice (justification) conclusion making process 3. Identify possible actions 4. Assign probabilities 5. Calculate expected values 1. Identify desired outcomes 2. Assign utilities DeWolf Bosek (1995)15 Table 1 (continued) 145 RNs Consequentialism & deontology Aroskar (1986)25 Psychologists Consequentialism Tymchuk (1986)7 6. Implementation (continued) 9. Participate actively in resolving the issue 10. Apply state/federal laws governing nursing practice 11. Evaluate the resolutive action taken 4. Determination of which alternative to 8. Choose and act on a resolutive action implement 5. Review procedures 9. Follow the situation until you can see 7. Reviewing the process to learn what 7. Evaluation needs to be changed in dealing with the actual results of your decision, and future ethical situations in patient care use this information to help making future decisions 5. Consider as many possible alternative 4. Seeing what help may be gained by looking at the alternatives from the decisions as you can perspective of ethical theories and 6. Consider the longand short-range concepts consequences of each alternative decision 5. Making a decision 7. Reach your decision 8. Consider how this decision fits in with your general philosophy of patient care 6. Taking action 11 stages 1. Identify the moral aspects of nursing care RNs & nursing students Code of ethics, ethical principles Cassells and Redman (1989)26 2. Gather relevant facts related to a moral issue 3. Clarify and apply personal values 4. Understand ethical theories and principles 5. Utilize competent interdisciplinary resources 6. Propose alternative actions 2. Determination of available 7. Apply nursing code(s) of ethics to alternatives help guide actions 3. Determination of who should decide which alternative to implement 7 stages 7 stages 1. Distinguishing a predominantly ethical situation from one, for example, that is primarily a communication issue 1. Determination of who should 2. Gathering an adequate information 3. State who’s involved in making the participate in the decision base decision 4. Identify your role (quite possibly, your 3. Identifying the value conflicts role may not require a decision at all.) Clinicians in general (The University of Colorado Medical Center) Consequentialism 9 stages 1. Identify the health problem. 2. Identify the ethical problem. Murphy and Murphy (1976)19 Table 2. Eleven studies of ethical problem solving processes 146 1. Identification of ethically relevant issues and practices 1. Perceive the situation as having ethical 1. Review the situation and identify a) concerns health problems, b) decision(s) needed, and c) key individuals involved 10 stages Psychologists Teleology, deontology, existentialism, synthesis of different ethical theories Individual influences: level of cognitive moral development, ethical orientation, demographic profile Issue specific influences (moral intensity): temporal immediacy, magnitude of consequence, proximity, concentration of effect, probability of effect, and social consensus Significant other influences (family, friends, coworkers, peers, and/or a wide variety of extraneous stakeholders) Situational influences: culture/climate and physical structures of organizations External influences: society, politics, economics, and technology 7 stages Maybe clinicians in general (not RNs mentioned) Antecedent factors: proximity in time, Utilitarianism, deontology an emotional involvement, a factual deficit, personal involvement, confu- Contents and details are provided in each stage sion of values Supporting/negating factors to support a preferred option in stage 3: assumptions, consequences, legal factors, emotions, proximity in distance and time, previous experiences, values, facts, and role responsibilities 6 stages Hadjistavropoulos and Malloy (2000)22 Thompson and Thompson (1990)12 DeWolf (1989)30 Table 2 (continued) (continued) 147 Hadjistavropoulos and Malloy (2000)22 2. Gather information that is available in order to a) clarify the situation, b) understand the legal implications, c) identify the bureaucratic or loyalty issues 3. Identify the ethical issues or concerns in the situation and a) explore the historical roots, b) explore current philosophical/religious positions on each, and c) identify current societal views on each 4. Examine personal and professional values r/t each issue 5. Identify the moral position of key individuals 6. Identify value conflicts, if any 7. Determine who should make the final decision 8. Identify the range of possible actions 2. Development of alternative courses of action and a) describe the anticipated outcome for each action, b) identify the 3. Analysis of the likely short-term, ongoing and long-term risks and elements of moral justification for benefits of each course of action on each action, c) note if the hierarchy of the individual(s)/group(s) involved or principles or utilitarianism is to be likely to be affected used 9. Decide on a course of action and carry 4. Choice of course of action after it out conscientious application of existing principles, values, and standards Thompson and Thompson (1990)12 5. Action with a commitment to assume responsibility for the consequences of the action 6. Evaluate the decision-making process 10. Evaluate the results of the decision/ 6. Evaluation of the results of the course of action and their actions action and note a) whether the expected outcomes occurred, b) if a 7. Assumption of responsibility for consequences of action, including new decision is needed, c) if the correction of negative consequences, decision process is complete, d) what if any, or re-engaging the decisionelements of this process can be used making process if the ethical issue is in similar situations not resolved 2. Choose a preferred option 3. Use various factor to support their preferred option 4. Communicate their option choice 5. Implement an option DeWolf (1989)30 Table 2 (continued) (continued) 148 6. Evaluate the effect of the action taken 5. Make a responsible collaborative decision and take action 2. Gather and analyze relevant information 3. Clarify personal values and moral position 4. Based on stage 2 & 3 determine options 6 stages 1. Identify the existence of an ethical dilemma or situation RNs Ogershok (2002)23 Table 2 (continued) Kirsch (2009)1 2.3. The implementation of the decision 4. implement, evaluate, reassess All healthcare providers Anesthesiologists Utilitarianism, deontology, liberal indivi- Realm-Individual Process-Situation (RIPS) model dualism, communitarianism, ethics of Rule-based approach, ends-based care, etc. approach, & care-based approach 4 stages 4 stages 1. Recognize and define the ethical issues 1. Identifies the problem Realm: individual, organizational/ The recognition of the problem’s institutional, social relevant aspects Individual process: moral sensitivity, The designation of the root problem moral judgment, moral motivation, The evaluation of the cause and effect moral courage, moral failure relations in the problem Situation: issue or problem, dilemma, distress, temptation, silence 2. Reflect What else do we need to know about the situation, the patient, and the family 2. Three stages to resolve the dilemma What are the consequences of action? 2.1. The clarification or evaluation of the What are the consequences of inaction? The adapted Kidder test for right versus feasible options wrong?: Is it illegal?, the stench test, the front page test, the mom test, and the professional values test 2.2. The determination of the best 3. Decide the right thing to do solution to the problem Devlin and Magill (2006)27 3. Analyze the information in context of the question(s) 3.1. Generate all real options 3.2. Consider each option in terms of the relevant values, principles and consequences: 3.3. Articulate your choice by framing it as an ethical argument 3.4. Check for consistency: is the conclusion consistent with fundamentally accepted values and practice? 4. Prioritize recommendations and articulate supporting argumentation 5. Implement recommendations 6. Evaluate application of recommendations and provide follow-up 2. Gather all necessary and relevant information: biological, psychological, and social 6 stages 1. Identify and articulate the ethical question(s) or dilemma(s) to be addressed Family physicians of Canada Teleology, deontology, caring ethic, communitarianism, virtue ethic, casuistry Bereza (2010)18 Park 149 Caring ethics (care-based approach) and virtue ethics1,18 were rather uncommon in the reviewed models. Virtues are the elements of desirable moral character, and caring is an essential virtue, especially for nurses.16,20 Both virtue ethics and caring ethics support good ethical decision making of nurses. However, they are regarded as being limited in the guidance of ethically correct actions in troubling situations, and therefore they ‘cannot serve as the basis of a comprehensive ethical theory’ (p.43).16 In addition, although caring ethics is readily accepted in the nursing profession, it is not commonly found in other health professions.16 It is this which may limit nurses’ collaboration with other professionals in solving ethical problems. Moreover, in a systematic decision-making model using an analytical approach, virtue ethics and caring ethics may be less preferable than deontological or teleological principles (the rational calculation of utilities).20 In addition to ethical theory, the authors suggested diverse guides for ethical decision making, including ethical principles (respect for patient autonomy, nonmaleficence, beneficence, and justice), ethical rules (fidelity, veracity, and confidentiality), code of ethics, comparable cases in the past (casuistry), and health professionals’ conscience. At the same time, some authors stressed contextual factors like individual or organizational characteristics that may influence ethical decision making.6,13,21,22 Health professionals’ individual characteristics that must be taken into account include personal value systems, perspectives of the health professional-patient relationship (paternalistic mode vs participatory mode vs advocate, for example), role responsibility, decision-making styles, level of cognitive moral development, ethical orientation, and demographic profile. Organizational characteristics influencing ethical decision making include organizational culture, policy, a line of authority, and communication system. An ethical problem cannot be solved simply by following a formula, and should be approached in consideration of its particular circumstances. The contextual factors that directly or indirectly influence the quality of ethical decision making should be carefully examined. Stages of the process of ethical decision making or problem solving. The authors of the reviewed models clearly presented necessary steps for decision making or problem solving, but explanations about how to better perform each step or which aspects to be considered in the field of healthcare appeared insufficient. The number of stages of ethical decision-making or problem-solving processes varied from four to 11. The authors suggested very analogous decision-making or problem-solving processes with a general consensus. As shown in Table 1, an ethical decision-making process was grouped into five: 1) a pre-information collection stage including a statement or perception of an ethical problem; 2) information collection; 3) a postinformation collection stage including mostly identification of an ethical problem; 4) identification and analysis of alternative actions; and 5) selection of an alternative and justification of the decision. An ethical problem-solving process had two more steps than an ethical decision-making process: implementation of a chosen action, and evaluation of its results. In Tables 1 and 2, comparable similar stages are placed on the same horizontal line for easy comparison. If two stages are combined into one, it is placed in the line of the earlier stage, as seen in the last stage of ‘implement, evaluate, reassess’ of the ethical problem-solving process by Kirsch (Table 2). Stages of identification of an ethical problem and gathering information. A rather big difference in the reviewed processes was found in the first three stages until identifying the ethical problem. Six models9,12,21,23-25 out of 20 had all of the first three stages, which were from problem statement or any other actions before information collection to information collection, and to an accurate identification of an ethical problem. Six models1,18,19,26-28 had the first two stages, problem statement and information collection, and omitted the third stage of confirmation of an ethical problem. In these models, information seemed to be collected for developing alternatives rather than clarifying an ethical problem. Three models6,13,29 started the process right away with information collection, which was followed by identification of an ethical problem. Another three models7,14,15 started with the second stage of information collection and directly moved to 149 150 Nursing Ethics 19(1) the fourth stage of identification and analysis of alternative actions without mentioning a stage of statement (stage 1) or identification of an ethical problem (stage 3). However, it seems to be invalid to find solutions without knowing the exact problem. A stage for stating or identifying a specific ethical problem was critical in order to learn what the problem was and whether the problem was an ethical issue or a non-ethical issue, such as a communication problem, a patient-nurse relationship, or individual attitudes. Gathering information is necessary for clarifying the problem and in some cases the ethical problem at first needs to be restated or can even be concluded as non-ethical while searching primary causes or reasons of the issue at stake. Information to be collected is not always stated in the models; it can be either facts or values/preferences of involved individuals, either medical or non-medical aspects. The models often required the identification of those individuals who should be involved in decision making and whose values should be considered. Accordingly, information can be collected not only from a patient himself/herself but also other stakeholders including family members, health professionals, institutions, payers, or communities. The other two models22,30 started with either a first stage of problem statement or the third stage of identification of ethical problem and then directly moved to the fourth stage of identification and analysis of alternative actions. In the models that contained all of the first three stages,9,12,21,23-25 the first and the third stage were different: an ethical problem was found and plainly stated at the first stage and clarified in the third as a result of gathering further information. Not all authors believed that additional information was needed to clearly identify an ethical problem. However, in most occasions a stage of information gathering seems to be critical for clarifying the issue or for developing alternatives even if it was not mentioned in an ethical decision-making or problem-solving model. The amount of information that needs to be additionally collected to identify an ethical issue may vary, depending on how much information is already known to the involved actors at the start point. It is tentatively concluded that an ethical decision-making process is not necessarily linear or proceeds in a single direction: at any step of an ethical decision-making process, decision makers can go back to the step of information collection. Stages of selecting an alternative and evaluation. Sixteen models out of 20 included the fourth stage of identification and analysis of all possible alternatives. Kirsh,1 though, approached ethical problem solving with a do-or-undo perspective, limiting consideration of diverse alternatives. In four models,1,6,29,30 the fourth stage of developing and analyzing possible alternatives was omitted and moved to a fifth stage of choosing one ethically right action. These authors seemed to believe that we can determine one solution if we clearly understand the situation including a patient’s preference or relevant ethical principles. Even if this is true, a choice would be better justified when the alternatives are compared considering the same condition. Justification of the selected decision in the fifth stage is critical for an ethical decision-making process because a decision that cannot be justified or is reached without knowing the reason is not considered ethical. Only eight models6,9,13,15,18,19,21,30 clearly stated their justification of the selected alternative. Most of the nine ethical decision-making models ended by choosing one solution or justifying it; however, Haddad’s model24 added the last stage to decide ways to implement the choice, and the model of BaumannHolze et al.14 added a final stage in order to evaluate the decision-making process. All except one of the 11 ethical problem-solving models ended with an evaluation stage.27 The content of evaluation was not clearly stated in most models, but some mentioned that both decision-making process and the results/effects of the action need to be evaluated at the end.12,22,25,28,30 Unlike these models, Tymchuk7 suggested that the ethical decision-making process be evaluated right after deciding the best solution and before implementing it, which is similarly found in Baumann-Holze et al.14 In this way, the quality of ethical decision making or problem solving is likely to be better satisfied. Some ethical decision-making or problem-solving models mentioned directly or indirectly a feedback loop; for example, by re-engaging the decision-making process or following up the case.1,12,18,19,22 Consensus in ethical decision can be obtained through a collaborative decision-making process by communicating 150 Park 151 moral positions or preferences of key individuals and by brainstorming possible alternatives together. Four models14,26,28,30 mentioned shared decision making or collaboration for ethical problem solving. Integrated ethical decision-making model The strengths and weaknesses of the reviewed ethical decision-making models were critically evaluated and taken into account in the integrated model of six steps, as presented in Appendix 1. This study tried not only to logically integrate the reviewed processes but also to suggest considerations at each step. To be accurate, this model is a problem-solving model, though here in the current study, it is called by the more conventional title, a decision-making model. Appendix 1 summarizes this ethical decision-making model with its application to a clinical case. Step 1. State an ethical problem. Any ethical decision-making process starts with perceiving the problem. One of the common mistakes among nurses is that they make statements concerning ethical issues using actionoriented terms or those connected with a do-undo approach. Ethical problems should be stated in terms of ethical values, and thus a decision process is more likely to be focused on ethical aspects rather than on practical feasibility. It is critical to consider ethical principles and values separately from non-ethical and practical aspects like environmental or personal constraints: if not, an ethical decision can be affected by non-ethical and practical reasoning. Certain problems that initially appear to be ethical in nature may reveal themselves to be communication difficulties, clinician-patient relationship issues, or legal problems. As an example, when a nurse is requested to assist voluntary euthanasia of a patient suffering from irremediable and intolerable pain, she/he refuses the request because she/he would be charged for murder even if she believes voluntary euthanasia is ethically justified in this case.3 In this hypothetical case, the nurse’s decision is based on legality rather than on ethics. Stakeholders’ different perceptions of the problem are likely to bring about different attitudes in an approach to the problem. Evaluating some characteristics of the problem may help clarify one’s perception and attitudes throughout the decision-making process, like questions of temporal urgency, the magnitude of consequences, and whether the ethical problem already exists or is likely to occur.22 For instance, when health professionals confront a problem requiring an immediate decision, they may not be able to wait for a complete consensus among all key individuals, they may need to compromise someone’s values to save a patient’s life, despite possibly deceiving a patient temporarily. In addition, the degree to which our ethical behavior influences a patient’s life, and the level of seriousness of the ethical problem is likely to influence attitudes and the level of expected efforts of involved parties. These questions can help clarify the problem and reveal a gap of understanding among stakeholders. However, further information may be required to clarify the problem, identify reasons behind it, or to suggest alternatives. Step 2. Additional information collection and analysis of the problem. To decide the range of information, nurses first need to know who are involved in this issue and what information is needed from each actor or party. In Appendix 1, a cross table is a summary of what kind of information is necessary from whom. Stakeholders can be roughly grouped into four: 1) patients; 2) family members as caregivers or surrogates; 3) health professionals; and 4) environments including an institute, associations of health professionals, or a society with culture, law, policy, or values common to that social group. The types of information required to overcome a problem are grouped into four: 1) biological aspects; 2) psychological aspects; 3) social or historical aspects; and 4) goals, preferences, or values related to the issue. As seen in Appendix 1, when the involved actors and types of information are cross-referenced, the necessary information to collect can be more easily identified. Because ethical problems occur when values or goals are inconsistent among stakeholders, this information needs to be learned from all stakeholders regarding the specific ethical problem with which 151 152 Nursing Ethics 19(1) they are confronted. In addition, aspects such as biological, psychological, and social or historical related to the current situation should be learned from different stakeholders. Certain types of information, like health professionals’ biological aspects or an institute’s biological or psychological aspects, appeared not relevant to the solution of most ethical problems. In this process, professionals may need to provide the actors with information needed to establish their own perspectives or opinions regarding the problem. If a consensus among stakeholders is luckily obtained in this step while important information is communicated, the actors may be able to stop at that point and the problem is solved. After reviewing all relevant information, professionals need to return to the statement of ethical problems in Step 1 and confirm the first statement or restate it as accurate. If the problem is found to be a non-ethical issue, we need to apply a general problem-solving process, as appropriate. Step 3. Develop alternatives and analyze and compare them. Now all individuals affected by the decision are sharing necessary information and the problem and the reasons for and backgrounds of value conflicts should be clear. Accordingly, all possible alternatives/solutions are now suggested and shared among stakeholders. At this stage, all possibly right or wrong and good or bad actions should be included and reviewed in terms of ethics rather than practical feasibility. Stakeholders have to analyze and compare the alternatives based on diverse ethical theories and principles, codes of ethics, legal aspects, personal conscience or religious beliefs, and an institute’s or a society’s values or policy. It is more reasonable to apply diverse ethical theories or perspectives altogether to compare multiple alternatives. Unlike certain other fields of human endeavor, such as business, wherein ethical decisions are more often decided by its consequences, nurses cannot make an ethical decision based solely on consequence and always have to take seriously a deontological perspective considering their duties as healthcare providers as well as patients’ rights. Common ethical rules are fidelity, veracity, and confidentiality, while classical ethical principles are respect for patient autonomy, nonmaleficence, beneficence, and justice in healthcare.31 The most common ethical theories include utilitarianism or ends-based; deontology or duty-based; virtue ethics (is this decision consistent with what the nurse as a human being values?); and caring ethics (would this be the type of care you would want for yourself if you were the patient?). Lewis et al.’s Options, Outcomes, Values and Likelihoods (OOVL) Guide,32 shown in the clinical case in Appendix 1, is useful to find an alternative according to utilitarian/consequentialist theory. Alternatives are listed at the left column and all possible long-term and short-term outcomes of different alternatives are listed at the top horizontal row. Values of different outcomes are evaluated using a Likert type scale: different parties may have different answers. In addition, for each alternative a nurse assesses the possibility of relevant outcomes for each alternative. When this table is filled out, which alternative should be chosen becomes more visible. Step 4. Select the best alternative and justify your decision. In ethical decision making, the purpose is to find the best solution with which most parties, including the patient, are satisfied. Through the process of analysis and comparison, a nurse has to decide the best choice and justify it. Even though a certain behavior brings about good or right results, it is not ethical behavior if you cannot justify it. Justification is essential and a nurse has to be able to reasonably respond to differing opinions. There are some questions nurses can apply to learn whether they are confident with their decision. For example, they can answer the five questions suggested by Edgar33 – legal test, front-page test, gut-feeling test, role model test, professional standard test, as presented in Appendix 1 – assuming a situation when the chosen alternative was implemented. Step 5. Develop strategies to successfully implement the chosen alternative and take action. When nurses are confident with what is ethically right or good, they have to plan how it can be actualized. They should not restrain ethically correct decisions and have to find the best strategies to support their ethical decision. 152 Park 153 Table 3. Example excerpts of students’ experiences of applying the integrated ethical decision-making model Improvement in the decision-making process – When not using this model, I tended to make a guess rather than utilize ethical theories or principles. – I had to think about many different aspects while applying the model, and I believe this training will help me more comprehensively review ethical problems in the future. – Without the model I would not have gone though such a sound thinking process. – There was no difference in the final decision whether we applied the model or not. However, our decision-making processing was very different. Without the model, we approached an ethical problem as if it were a true-false question. When we used the model, we were able to discover many diverse situations and alternatives. Improvement in developing and selecting options – We realized that an option supported by a larger number of ethical principles or rules is desirable. We didn’t know that when reviewing options without the model. – I found that some options preferred in terms of short-term outcomes were less desirable in terms of their longterm outcomes, which I would never have realized without the model. – I chose an option with more caution and became more confident with my decision. Improvement in attitudes in ethical decision making – I was able to better understand a client’s thoughts or feelings while comprehensively exploring reasons for the problem. – I was able to clarify my own value systems while reviewing the different goals or preferences of the parties involved. – I realized how difficult it is for a nurse to reach ethically good or right decisions, because a nurse’s decision directly affects the life of a client. I almost had a headache when considering the different views of all those involved. – We were rather upset when we found that each of us had dissimilar perspectives on the given ethical problem. Understanding characteristics of ethical dilemmas – I felt uncomfortable that I was not able to find a completely satisfying solution; I had to choose only the best possible option for a certain ethical problem. – We had to admit that there were situations in which no option is perfect. – It was very difficult to choose an option: when we chose the first option, some aspects of other options, which were incompatible with the first option, appeared still attractive. Difficulties in developing strategies for achieving ethical goals – It is complicating to think about possible strategies to fulfill our ethical goals. Although we know what is ethically right, we were not able to find proper approaches or tools available in clinical settings. Applicability of the model in future nursing practice – After learning this model, I thought that my ethical decisions in the future would be more consistent, reflecting my own beliefs and views. – At first it took us a long time to reach a conclusion because we were not accustomed to such a comprehensive consideration when applying all kinds of ethical knowledge. However, it was much easier once we learned the process of the model, and, as a clinical nurse, I want to use the model in the future. At this point, all of the involved health professionals have to actively participate in developing the best way to implement the ethical decision regardless of whether the final decision is the one he or she originally intended. Step 6. Evaluation. Healthcare professionals need to evaluate the effects of any chosen action as well as the decision-making process itself. If the expected outcomes are not achieved despite a good quality of decision-making process, they may need to go back to a previous step and consider other strategies. In addition, if the confronting ethical problem is solved successfully at this time, nurses need to develop strategies to prepare for similar problems that arise in the future at three levels: individual, institutional, and community/societal. 153 154 Nursing Ethics 19(1) Usability of the integrated ethical decision-making model Twenty student groups in nursing ethics courses reported that the model was easy to understand and follow and very useful for them to solve the clinical ethical issues. The benefits of using the model were many, and example excerpts from the students are provided in Table 3. When applying the model, the number and the diversity of supporting criteria for their ethical decision and alternatives were greatly enhanced: for instance, the number of alternatives increased from two to four or five in a majority of the student groups when applying the model for solving ethical problems. Accordingly, students expressed a stronger confidence with their final decision and its justification when they applied the structured model for decision making. The students said that they made ethical decisions based often on their intuition or subjective judgment without the model, but they were able to make a decision with rationales satisfying more ethical principles or professional standards. In the process of solving ethical problems using the model, the students said that they approached the clinical ethical problems more seriously and felt stronger responsibility for their decision while they reviewed all relevant actors’ preferences and possible long-term and short-term outcomes. For example, they said that they were able to better understand a patient’s perspectives or feelings. Overall, students felt safer because they believed that the use of the model improved quality of the ethical decision-making process and possibly its outcomes avoiding hasty decisions. The students reported that they unexpectedly became aware of their own ethical values and the diversity of values among their peers while they worked on the ethical problems as a group. Most difficulties were reported in Step 5 of developing strategies to implement the decision and in Step 6 of developing strategies to prevent similar ethical problems in the future. Probably students’ knowledge and experience in clinical practice and its environment were not sufficient for strategy development. However, regardless of using the model, students found it difficult to apply ethical theories or to deal with ethical dilemmas with no correct answer. Nevertheless, they said that they would use this model in the future as a RN because it is easy to apply and because it would help them to be a responsible professional. Conclusions An integrated ethical decision-making model was developed based on a systematic review of previous ethical decision-making models and its pilot-test with baccalaureate nursing students in an ethics course. Despite the different number of decision-making steps or stages, the reviewed 20 ethical decision-making models suggested somewhat similar logical decision-making processes. However, most decision-making models often appeared less effective because they did not explain how each stage could be better accomplished or more considered. Most models focused on process and neglected content, so that a practical use of these models may be less than useful. Therefore, this study developed an integrated ethical decision-making model consisting of six steps and including critical considerations to satisfactorily accomplish each of those steps. Nursing students reported very positive experiences in applying the model to ethical cases in their ethics course. This study found that the model presented here can be easily adopted in the teaching of nursing students. It is similarly expected to be adoptable to solve ethical problems in clinical settings among nurses, especially neophytes. Ethical decision-making competency becomes more and more challenging in clinical practice for a variety of reasons, including the increasing diversity of individual value systems, rapidly changing healthcare environments, and the complexity of healthcare systems. The best ethical decision should be determined by putting efforts from all relevant professionals and a nurse should not overlook his or her responsibility as long as he or she is involved in patient care. A structured ethical decisionmaking model does not guarantee ethically right or good decisions because ethical decision making is not a mechanical process.22 Nevertheless, a structured model does highly likely improve a process and 154 Park 155 outcomes of clinical ethical decisions. It is recognized that there is a need for the model to be repeatedly applied, tested, and refined in both the educational and practical environments. Funding This research was supported by the Kyungwon University Research Fund of 2011 (KWU-2011-R172). Conflict of interest statement The author declares that there is no conflict of interest. References 1. Kirsch NR. Ethical decision making: application of a problem-solving model. Top Geriatr Rehabil 2009; 25(4): 282–91. 2. Grundstein-Amado R. Ethical decision-making processes used by health care providers. J Adv Nurs 1993; 18: 1701–9. 3. Johnstone M. Bioethics: a nursing perspective, fifth edition. Chatswood, NSW: Churchill Livingstone Elsevier, 2009. 4. Self DJ. A study of the foundations of ethical decision-making of physicians. Theor Med 1983; 4: 57–69. 5. Self DJ. A study of the foundations of ethical decision-making of nurses. Theor Med 1987; 8: 85–95. 6. Pellegrino ED. The anatomy of clinical-ethical judgments in perinatology and neonatology: a substantive and procedural framework. Semin Perinatol 1987; 11(3): 202–9. 7. Tymchuk AJ. Guidelines for ethical decision making. 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New York: Oxford University Press, 2009. 32. Lewis M, Hepburn K, Corcoran-Perry S, Narayan S and Lally RM. Options, outcomes, values, likelihoods decision-making guide for patients and their families. J Gerontol Nurs 1999; 25(12): 19–25. 33. Edgar PH. Resolving ethical dilemas: applying the Institute for Global Ethics’ Ethical Fitness Model to occupational and environmental health practice issues. AAOHN J 2002; 50(1): 40–5. 156 Park 157 Appendix 1. Integrated ethical decision-making model and its application with a clinical example An 85 year-old man with dementia was admitted to a hospital via the emergency room because of aspiration pneumonia. His wife, who cared for him, said that recently he had been having difficulty swallowing even soft food. According to a result of a VFSS (video fluoroscopic swallowing study), he had severe dysphasia; so Levin-tube feeding was recommended to prevent the recurrence of aspiration pneumonia. His physician believed that his dysphasia was unlikely to be cured because its occurrence was due to dementia. The physician explained to the patient’s wife that Levin-tube feeding was the most effective way to prevent pneumonia and that any recurrence of pneumonia would be very risky given the age of the patient. However, the patient’s wife simply refused to insert the Levin tube into her husband despite understanding the high risk of a recurrence of aspiration pneumonia if he took food by mouth. Finally the patient was discharged without the L-tube, and in order to lower the risk, his wife was taught how to prepare food to increase its viscosity and how to position his neck when swallowing food. Nevertheless, he was admitted again for aspiration pneumonia four months later. He had lost too much weight and had a bed sore on his coccyx because he had not been taking enough food due to the risk of aspiration. Although his pneumonia was again treated well, another VFSS showed that his swallowing function had deteriorated. The wife once again refused to insert the Levin tube, saying that if she did so his quality of life would be poorer and he was old enough to refuse treatment even if it meant that that treatment would extend his longevity. When a physician asked me to persuade the wife to change her mind, I was unclear about what would be the best ethical course of action. Step 1. State an ethical problem 1) Problem statement as a conflict of ethical values: Avoid a statement using behavioral terms (actionoriented) or choosing one of two options. 2) Is this an ethical issue? Or, is this a communication problem, a clinician-patient relationship issue, or a legal problem? 3) Characteristics of the problem can be assessed to learn your own perception or attitudes. A. Temporal urgency (e.g., high, middle, low): How urgent is the decision? B. Magnitude of consequences (high, middle, low): How greatly does the decision affect the health status and quality of life of the patient? C. Does the ethical problem already exist or is it likely to occur? 4) Do you need further information to comprehensively understand the problem or to seek alternatives or options to solve it? 1) Ethical dilemma between a principle of respect for patient autonomy and a principle of beneficence for lowering a risk of aspiration pneumonia, which could threaten the patient’s life 2) It is an ethical issue. 3) A. Middle 3) B. High 3) C. Already existing problem 4) Yes. For example: 1) What is his decision-making ability? 2) Is he able to express his desire for treatment and quality of life? 3) If he is not able to understand or decide medical treatment for him, is his wife a surrogate who best knows the patient’s preference? 4) Does his wife make decisions based on not her own interest, but the patient’s interest and preference? (continued) 157 158 Nursing Ethics 19(1) Appendix (continued) Step 2. Additional information collection and analysis of the problem – Who are actors involved in this issue and what information is needed from each? – If necessary, provide the actors with information needed to establish their own perspectives and opinions regarding the problem. – Biological information (e.g. diagnosis, treatments, prognosis and expected outcomes), psychosocial information (e.g. values, cultural backgrounds, religions, growth, emotional stress), social/historical aspects, or goals preference, values related to the issue. Information Actors involved Biological Psychological Social, Goals, aspects aspects historical preference, aspects values Patient O O O O Family or significant others O/X O O O Professionals X O/X O/X O Institute, associations, or society X O/X O X For example, we learned the following: – The patient did not express his preference in medical care before having dementia. – His wife is afraid of feeding her husband via L-tube because she is not sure whether she can do it safely. – His wife hopes that her husband lives the rest of his life with dignity and believes that having food via L-tube seriously damages his dignity. – Health professionals are responsible to prevent pneumonia, and L-tube feeding is a good choice because the patient can stay at home and his wife will be able to take care of him. – Our society highly values both a patient’s right to choose a treatment (autonomy) and health professionals’ duty to provide any necessary treatment. In recent years, a patient’s right of autonomy is becoming more established. Note: O ¼ YES, X ¼ NO – Who is the ultimate decision maker? – Is the statement of an ethical problem in Step 1 correct? If necessary, correct them and restate the problem – The patient’s wife – Yes, this is an ethical conflict as stated in Step 1. Step 3. Develop alternatives and analyze and compare them – To analyze and compare alternatives, various aspects need to be considered as follows: 1) Ethical rules (fidelity, veracity, and confidentiality) 2) Ethical principles (autonomy, nonmaleficence, beneficence, justice) 3) Ethical theories (utilitarianism, duty-based, virtue ethics, caring ethics) – Options, Outcomes, Values, and Likelihood (OOVL) Guide may be useful for applying utilitarianism 4) Professional ethics – codes of ethics, guidelines for practice 5) Legal aspects 6) Health professionals’ personal conscience or religion 7) Institute’s or society’s values, guidelines, or policy Alternative 1. inserting L-tube after getting consent from the wife Alternative 2. respecting her decision and not-inserting Ltube Applying utilitarianism, Lewis et al.’s32 Options, Outcomes, Values, and Likelihood (OOVL) Guide can be used as follows, using a Likert-type scale. Short-or Long-term Outcomes Prevention of Provision Discomfort pneumonia of proper of keeping nutrition L-tube* Values High Medium Medium Alternative 1 High High High Alternative 2 Low Low Low * negative outcome (continued) 158 Park 159 Appendix (continued) Step 4. Select the best alternative and justify your decision – As a result of analysis and comparison, which one has a priority among the alternatives? – Is the chosen alternative consistent with your own value or institution’s value? – Think about an opinion that does not conform to your choice and challenge it – Assuming a situation when the chosen alternative was implemented, answer the following questions. 1) Legal test. Is the chosen option consistent with law? 2) Front-page test. What if this case were published in one of the popular newspapers? 3) Gut-feeling test. Is your decision consistent with your gut-feeling as a nurse? 4) Role model test. Is a RN you respect likely to make the same decision? 5) Professional standard test. Is your decision acceptable to the nursing profession? Step 5. Develop strategies to successfully implement the chosen alternative and take action Step 6. Evaluate the outcomes and prevent a similar occurrence – Evaluate the outcomes of the chosen action and the decision-making process – Strategies for preventing a similar problem in the future 1) At an individual level 2) At an institutional level 3) At the community or societal level – We selected the alternative 1: inserting L-tube after getting consent from the wife. 1) Yes. 2) Yes. 3) Yes. 4) Yes. 5) Yes. – To persuade his wife, you may let other family members participate in decision making. For example, their children may agree with you and may be able to persuade their mother. – Health professionals need to make sure his wife clearly understands his medical condition as well as the benefits and risks of L-tube insertion. – To lessen his wife’s burden of L-tube care, you can ask their children to participate in caring for their father, or arrange a home nurse as necessary. 1) Better communication of each other’s values between healthcare professionals and a patient/family; providing a patient/family enough information needed to understand the necessary medical treatments 159 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission.
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Matching Design Discussion

Matching Design Discussion

macth the design with the description. match the design with the description on the next page

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Topic 3 DQ6 Heart Failure Companion Healthcare Discussion Help

Topic 3 DQ6 Heart Failure Companion Healthcare Discussion Help

Please respond with a paragraph to the following post, add citations and references:

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What nursing interventions are appropriate for Mrs. J. at the time of her admission? Drug therapy is started for Mrs. J. to control her symptoms. What is the rationale for the administration of each of the following medications?

At presentation to the unit, the patient would be placed on a non-rebreather at 15L pending MD and RT evaluation. The patient would be sat up in High-fowlers position to allow for better ventilation. EKG would be taken for establishing baseline cardiac rhythm. Intravenous access would be established to allow for administration of IV medications. Initial labs would be drawn to include a CBC, CMP, BNP, troponin, and ABG. X-ray of the chest would be ordered as well.

IV furosemide (Lasix)
A loop diuretic that works on the ascending loop of Henle, this medication is used to decrease preload and decrease the amount of fluid in circulation which will decrease the pulmonary edema and allow for a more thorough contraction from the left ventricle.
Enalapril (Vasotec)
This is an ACE inhibitor which prevents the conversion of angiotensin 1 to angiotensin 2 which leads to decreased afterload, improved stroke volume, increased cardiac output, and a slight reduction in preload. This patient has uncompensated CHF and this medication will increase the left ventricle efficiency.
Metoprolol (Lopressor)
This is a beta-blocker aimed at blocking the effects of catecholamines in the body that can assist in controlling the AFIB the patient is experiencing and regulate the ventricular contraction rate. If the left ventricle is slowed down and allowed to fill more completely, cardiac output is increased and vascular resistance is lessened.
IV morphine sulphate (Morphine)
An opioid analgesic has the ability to decrease pain and have respiratory depressive functions as well. This medication is administered, carefully due to low pressure the patient is experiencing, to reduce respiratory drive, distress, and again reduce preload. The patient is anxious and breathing quickly so if we can get her to slow down, her anxiety and PaCO2 will improve as well.
Describe four cardiovascular conditions that may lead to heart failure and what can be done in the form of medical/nursing interventions to prevent the development of heart failure in each condition.

Coronary artery disease (CAD) – a build up of cholesterol and fatty deposits build on the inside of the vessels that “feed” the heart. This stenosis causes decreased blood flow, loss of flexibility, and provides a risk of embolus a piece of the deposit breaks off. This often leads to chest pain, MI, and HTN.
To reduce the risk of CAD, recommendations include:
Stop smoking, manage cholesterol levels, exercising, and maintaining a healthy weight
Hypertension (HTN) – is a consistently abnormal systolic and diastolic blood pressure greater than 130 over 80. Stages of hypertension exist in four levels with one being elevated, hypertension 1, hypertension 2, and hypertensive crisis. This disease process leads to the heart having to pump harder to overcome vascular resistance. This also leads to decreased blood flow the myocardium as these vessels fill in diastole or when the ventricles are not contracting.
Decreasing stress, increasing exercise, maintaining a healthy weight, avoiding stimulants, avoiding drugs including cocaine and amphetamines, stop smoking, and taking medication to control blood pressure
Myocardial infarction – also known as a heart attack is a portion of the heart muscle being damaged or dying and scarring due to a sudden decrease of blood flow to the affected area. Many times this is due to an embolus or blood clot traveling to the heart (often from a piece of plaque) and preventing blood flow to the affected area. If the demands of the muscle are greater than the vessel is able to provide due to the clot, ischemia results and ultimately cardiac muscle damage. This damaged muscle cannot pump effectively and can lead to heart failure.
Decreasing the risk can include being female, exercising, quit smoking, managing cholesterol levels with an increase in high-density lipids, controlling your blood pressure, maintaining a healthy weight,
Dilated Cardiomyopathy (DCM) – This is the stretching and thinning of the heart chambers (ventricles and atrium) which initially affects the left ventricle. As the muscle dilates and lumen enlarges, the heart has to work harder to contract and is unable to empty completely. This progresses and ultimately leads to a lower ejection fraction and decreased cardiac output.
Exercise, treating infection that can affect the heart quickly like strep, decreasing alcohol intake, avoiding the use of stimulants, illicit drugs that stimulate the heart (cocaine and amphetamines),controlling co-morbidities including hypertension.
Taking into consideration the fact that most mature adults take at least six prescription medications, discuss four nursing interventions that can help prevent problems caused by multiple drug interactions in older patients. Provide rationale for each of the interventions you recommend.

Use pill sorting containers
Pill sorting containers will help the geriatric patient take their medications when indicated. Some medications need to be taken separately, at different times, or even with meals.
Keep an updated list of all medication with strengths and dosages to take to all physicians
Physicians deal with a large patient load and primary care providers are not able to address all health issues in their office. Many times patients have multiple physicians and specialists that provide their care with each prescribing their own medication regimen. If the patient has their updated medication list available, the physicians can be aware and help prevent interactions between medications.
Request large font labels on prescriptions or have the pharmacist confirm instructions
Many times, patients do not intentionally take their medication wrong. Often, a patient misunderstands what they are supposed to take and when. This is also true when a physician changes a medication and tells the patient to take it differently without rewriting the prescription.
Take as prescribed, not based on convenience
As patient’s are busier and busier it is inconvenient to take a medication four, five, or six times per day. This is truer when attending a special event or traveling out of town when the medication has to be sorted out and accounted for. Patients find it easier to take a handful of medication twice per day rather than a few here and there as prescribed not knowing that their efficacy could be in question.
References

Cardiogenic pulmonary edema. (2017). Retrieved from https://emedicine.medscape.com/article/157452-over…

Dilated Cardiomyopathy (DCM). (2016). Retrieved from https://www.heart.org/en/health-topics/cardiomyopa…

Application of Statistics in Health Care

Application of Statistics in Health Care

Statistical application and the interpretation of data is important in health care. Review the statistical concepts

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covered in this topic. In a 750‐1,000 word paper, discuss the significance of statistical application in health care. Include the following:

Describe the application of statistics in health care. Specifically discuss its significance to quality, safety, health promotion, and leadership.
Consider your organization or specialty area and how you utilize statistical knowledge. Discuss how you obtain statistical data, how statistical knowledge is used in day‐to‐day operations and how you apply it or use it in decision making.
Three peer‐reviewed, scholarly or professional references are required.

Prepare this assignment according to the guidelines found in the APA Style Guide, located in the Student Success Center. An abstract is not required.

This assignment uses a rubric. Please review the rubric prior to beginning the assignment to become familiar with the expectations for successful completion.

respond with a paragraph , citations and references.

respond with a paragraph , citations and references.

Using the research article selected for DQ 1, identify three key questions you will ask and answer when reading the research study and why these questions are important. When responding to peers, provide other questions and answers that could be considered in relation to the peers’ studies.

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The Future of Nursing Practice and the Role E-Poster

The Future of Nursing Practice and the Role E-Poster

You have to create an E-Poster on what you see as the future of nursing practice and the role of nursing in the emerging health-care environment. You need to predict the future based on present evidence.

The E-Poster needs to include the following:

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1. Introduction

2. Statement of the issue

3. Evidence supporting the issue

4. Prediction of the future role of the nurse

5. Conclusion

6. References: minimum of three references from peer-reviewed nursing journals (encourage the use of international journals). Articles need to be within the last 3 years unless historical.